When I first met Elena, my patient care assistant’s daughter, she…
Articles by Brianna Albers
Everyone and their mother is talking about Zolgensma (AVXS-101). Just like what happened with the release of…
It’s been, as they say, a day. My parents bought an airplane…
I write a lot about brokenness. I always have. It’s one of the themes of my work, not…
I’ve always been a night owl. It’s a running joke in our family: My dad and I stay…
I have a reputation in my group of friends for not knowing any music. It’s gotten to the…
The thing about taking amoxicillin every day for years is that your body builds…
I was recently asked about resources in the SMA community — what’s available, but also what’s…
I finally got a tattoo. It may not seem like that big of a…
I’ve been meaning to update my website for years, so I…