Hawken Miller, features writer —

Hawken graduated from the University of Southern California (USC) in 2019. Before joining BioNews, he wrote for the Washington Post’s video game and esports section, Launcher, where he still contributes as a freelancer. Hawken is also a columnist for BioNews, focusing on his experience with Duchenne muscular dystrophy for Muscular Dystrophy News Today. His work has appeared in Dot Esports, The Orange County Register, KTLA 5, and The Sacramento Bee. He won a Webby for virtual reality journalism at USC.

Articles by Hawken Miller

Q&A With RARE-X Disease Data Platform Founder, Nicole Boice

The nonprofit RARE-X is creating an easily-accessible, centralized data hub for all rare disease patient data that can help researchers answer questions about existing disorders, discover new ones, and work toward finding treatments. It was spun out of the work that Nicole Boice, founder and chief engagement officer of…

Rare Disease Day Events Bring Awareness, Equity to Patients

Since 2008, Rare Disease Day — the last day of February — has brought together patients, caregivers, family members, friends, and advocates from around the world to raise awareness and improve equity for the more than 7,000 known rare diseases that affect more than 300 million people. In 2022, the…

Real Life Inspires Son With SMA on ‘Ordinary Joe’ TV Show

One of NBC’s newest TV shows, “Ordinary Joe,” is making a mark in the spinal muscular atrophy (SMA) community for including a character with the disease. The drama series follows protagonist Joe Kimbreau, played by James Wolk, through three separate realities stemming from a single decision he made…

New Quality of Life Survey Aims to Help Inform SMA Community Needs

BioNews Insights is launching a new survey, in collaboration with SMA News Today, with the goal of understanding how different aspects of this disease affect an individual’s quality of life. The survey, which is expected to take about 15 minutes to complete, opens with WHOQOL-100, a set of questions developed…

SMA UK Network Helps Patients Navigate Adulthood

People with spinal muscular atrophy (SMA) are living longer, attending college, pursuing a variety of careers, and traveling more, thanks to a combination of new disease-modifying therapies, better quality care, and improved rights for those with disabilities. It also means they now are encountering unique sets of challenges in…