Spreading SMA Awareness in August and Beyond
Like most families broadsided with an unexpected, rare diagnosis, my husband and I had never heard of the one…
Helen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.
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Like most families broadsided with an unexpected, rare diagnosis, my husband and I had never heard of the one…
Keeping up with the calendars around here can be dizzying. One desk calendar is reserved for scheduling…
I’m writing this on June 29, the 13th anniversary of my father’s death. Remembering Dad today…
We had no reason to doubt that our third baby, Jeffrey, would be healthy. Our other children, Matthew and…
The past two and a half years have seen a whirlwind of celebration in the world of SMA.
Our old farmhouse has one bathroom and not much square footage. In the fall of 1996, it was…
When our children, Matthew and Katie, were in elementary school, I volunteered regularly in their classrooms. As a…
My husband and I moved into our old farmhouse in the mountains of North Carolina as 1995 wound to…
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