Helen Baldwin,  —

Helen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.

Articles by Helen Baldwin

Being Thankful, No Matter What

It’s so much more than the turkey. Memories of childhood Thanksgiving gatherings with grandparents, aunts, uncles, and cousins take me to a happy place. My paternal grandmother, Mammaw, wearing white socks and practical black shoes, poured sugar into the bowl for cake icing while the best ever…

Remembering That November, 23 Years Ago

It all started 23 years ago, this propensity for November to pack a punch. In the wee hours of Nov. 1, 1997, a power outage set the stage for an eventful day. Make that an eventful few days. By that time, our baby Jeffrey, diagnosed with…

When the Scary Stuff Became Real

As far back as I can remember, I have had an affinity for all things scary, creepy, suspenseful, and macabre. From “Alfred Hitchcock Presents” (which includes books, black-and-white TV reruns, and movies), to true crime drama, thriller fiction, and “The Walking…

Dreams of a White Picket Fence

When I began daydreaming about the kind of house my husband, Randy, and I would someday own, my vision included a big covered porch with a swing, a roomy yard with lots of trees, and a white picket fence. Gloria, our realtor in Fort Worth, Texas, had…

A Nurse, or 3, Named Mary

My teaching career started at Brockman School in Columbia, South Carolina. Nestled in the corner of a quiet neighborhood resembling a forest, Brockman was a self-contained school for children ages 3-21 with orthopedic and multiple handicapping conditions. My assignment was the kindergarten class. Several other…

The Importance of Paying Attention

In the beginning of the COVID-19 chaos, I tried to stay informed of updated health-related warnings and recommendations. I soon waved the proverbial white flag to ward off permanent whiplash from keeping abreast of the ever-changing information. During this pandemic pandemonium, my current primary daily duty is…

Finding SMA in Unexpected Places

Not long after our third baby, Jeffrey, was diagnosed with spinal muscular atrophy (SMA), my mother received a note from her cousin, who mentioned her two granddaughters’ “muscle disease.” Having believed for years that the girls had spina bifida, we learned quickly, though not totally shockingly, that…

Awareness, Evrysdi, and an Earthquake … Oh My!

There’s no need to dwell on the insanity that has defined 2020, so I’m skipping right on over to this month. I think it’s August. August is SMA Awareness Month, an opportunity to flood the universe with all things SMA for 31 days. Those in the…

The Papa Tomato

Our family has some generous gardening friends. One such friend keeps us spoiled with her garden goodies regularly. She has delivered to our porch zucchini, beans, lettuce, garlic, and fresh eggs. Oh, and tomatoes. *** Our baby Jeffrey’s routine check at two months…

Why I Appreciate Diagnosis Day Anniversaries

It’s probably safe to say that these past four months have been a blur for many. It seems that mere blinks ago it was mid-March, the last days of normalcy in untold routines, and the beginning of upheavals that have defied description. Somehow, it’s already four months…