Endurance tests that capture upper and lower body fatigue in spinal muscular atrophy patients — across ages, from children to…
Jonathan Grinstein
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Articles by Jonathan Grinstein
Treatment with Spinraza (nusinersen) benefits spinal muscular atrophy patients in terms of survival and quality…
Sense of Well-Being Tied to Ability to Take Part in Life and Engage with Others, SMA Patients Say
For people with spinal muscular atrophy (SMA), psychological well-being is not driven by socioeconomic factors or even illness…
When caring for a child with spinal muscular atrophy (SMA), health care staff do not make treatment decisions without informing…
Patient Perspectives on Spinraza Illuminate Need for Informed Decision-making on Treatment Options
Several key factors influence how and why some patients and their families may be hesitant to pursue, or decide to forego,…