What it means to go the distance while living with SMA
The album “A Whole New Sound” is a treasure trove of nostalgia for millennials. Released last month, it…
Articles by Kevin Schaefer
The comfort conundrum when living with SMA
In the family classic “Willy Wonka & the Chocolate Factory,” all four of Charlie Bucket’s bedridden grandparents share…
Your SMA mission, should you choose to accept it
In the “Mission: Impossible” franchise, each movie starts with Tom Cruise’s character, Ethan Hunt, opening an encrypted message…
Why having a familial relationship with my caregivers matters to me
My 7-year-old niece, Lily, has an unparalleled level of curiosity. She asks questions about the world, when we’re going to…
To manage SMA pain, I had to force myself to slow down
“It’s just a flesh wound.” The black knight utters this famous line in “Monty Python and the Holy…
Embracing the unsung heroes of the SMA community
On a recent episode of my favorite podcast, “Beautiful Stories From Anonymous People,” host Chris Gethard spoke with an…
Why we should embrace questions about disability
In the documentary “Still: A Michael J. Fox Movie,” the famed actor recounts how he hid his…
I’m hopeful that travel will get easier for people with disabilities
In “The Lord of the Rings,” Sam and Frodo travel through rocky terrains and the murkiest of marshes on the…
What I wasn’t expecting: A diagnosis of type 2 diabetes
My life often echoes the absurdity of a Monty Python sketch. When my primary care physician called me…
Benefits of role-playing games include accessibility, community
For the past couple of years, I’ve been playing a Star Wars role-playing game (RPG) with friends from…