Growing Pains Can Be a Real Headache with SMA
When I was a kid, I was skinny as a stick. Part of this was because…
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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When I was a kid, I was skinny as a stick. Part of this was because…
I’ve known for a long time that my post-college life would be a little unorthodox compared to…
The other night I was hanging out with a friend from college at a downtown pub. As…
Last fall, in a creative writing course, I wrote a fictional letter that was mostly a satirical…
As much of a geek as I am, I can’t recall the first movie I saw in…
I’m often asked by people how traveling works when you have SMA. The simple answer is that flying is a…
As I wrote in a previous column, the unpredictability associated with SMA is in many ways the hardest aspect of…
To say that SMA can throw a curveball at you at any given moment is like saying that the…
A few weeks ago I had a conversation on Twitter with a guy about the recently announced Batgirl movie,…
One Wednesday night when I was in high school, either freshman or sophomore year, my youth pastor, Todd, said something…
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