I listened to 78,978 minutes of music and podcasts in 2022. Thanks to the popular feature Spotify Wrapped,…
Kevin Schaefer
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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Articles by Kevin Schaefer
“Your 60s you’ll have a major surgery, the music is still loud but it doesn’t matter because you can’t hear…
“Pneumonia! It’s been a few years. How’ve you been? Sorry to be blunt, but I’d rather you not stick around…
The other day, I had my annual evaluation with a nurse to make sure I’m still disabled. This is one…
On the last day of this year’s Cure SMA conference, I sat on a panel called “It’s a Wonderful…
I recently attended my first pop culture convention since the onset of the COVID-19 pandemic. Masked up, I felt right…
In the film “Licorice Pizza,” 20-something protagonist Alana (Alana Haim) leaps from one adventure to the next in…
“You just gotta keep livin’, man. L-I-V-I-N.” Matthew McConaughey first delivered his iconic “Alright, alright, alright” catchphrase in the 1993…
As I write this, I’m sitting in the lobby of a Las Vegas hotel. This morning, I awoke to breathtaking…
A few days ago, I received my 17th injection of Spinraza (nusinersen), one of several SMA treatments approved…