MDA Clinical & Scientific Conference starts on March 16
Note: This story has been updated March 6, 2025, to correct a quote from Mindy Henderson, MDA vice president of…
Articles by Mary Chapman
Jerry R. Mendell makes TIME100 Health list for pioneering research
Jerry R. Mendell, MD, has been named to the inaugural TIME100 Health list for his decades-long contributions to the…
Ira Walker, living with SMA type 2, named MDA National Ambassador
The Muscular Dystrophy Association (MDA) has chosen Ira Walker, a Florida resident living with spinal muscular atrophy (SMA)…
Author’s new children’s book tells tale of boy whose sister has SMA
A new children’s book — one whose story is inspired by the author’s own family — seeks to heighten awareness…
MDA launches gene therapy support network for SMA, other NMDs
The Muscular Dystrophy Association (MDA) has opened the MDA Gene Therapy Support Network — a new program it’s…
Tufts researcher wins MDA grant to study SMA treatment access
The Tufts Medical Center, a teaching hospital of the Tufts University School of Medicine, has been awarded a Muscular Dystrophy…
BraunAbility Gifts SMA Family With a Wheelchair Van
BraunAbility has partnered with the nonprofit organization Laughing at My Nightmare (LAMN) to donate a wheelchair-accessible vehicle to a…
Ambry Seeks to Expand Access to SMA Prenatal Screening
Diagnostic testing company Ambry Genetics has launched a reproductive health program to increase access to carrier and prenatal screening…
UK Collaboration Gets £1.25M Grant to Develop ‘Smart Suit’
Development of an exoskeleton suit to help those living with progressive neuromuscular conditions that affect their upper-body movement will advance…
20 Liberty Trikes To Be Donated to Children with SMA, Other Diseases
Electric Bike Technologies (EBT) will donate 20 of its Liberty Trikes this year to help children with limited abilities get…