Author Archives: Mary Chapman

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

MDA Awards $6.6M to Scientists Working in SMA, Other Neuromuscular Diseases

Some $6.6 million in new Muscular Dystrophy Association (MDA) multiyear grants will support promising studies in an array of neuromuscular disorders, including spinal muscular atrophy (SMA). Through their work, the 25 award recipients hope to better understand disease mechanisms, build upon current treatments,  advance the identification of new…

BioNews’ Patient Forums Foster Community and Raise Awareness

Online forums have markedly altered how patients, caregivers, and healthcare professionals communicate and connect. Even when miles apart, individuals can establish supportive relationships, share experiences and information, and sometimes just vent. BioNews Services, a leading online health, science, and research publication company, has been rolling out…

’31 Days of SMA’ Among Highlights of August, SMA Awareness Month

SMA News Today, having launched forums and added regular columnists, is now running a month-long series to coincide with Spinal Muscular Atrophy Awareness (SMA) Month that highlights the challenges and perseverance of patients and caregivers. Called “31 Days of SMA” and running through August, the series spotlights a person…