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A Mother’s Journey of Hope

Don’t doubt a mother’s instinct—both Jaci and Skarleth* are proof. Shortly after their children were born, they both knew something was amiss. Before the age of two, their children would be diagnosed with SMA. Though their journeys were singular, they learned a challenging but incredibly empowering lesson when the role…

SMA Doesn’t Define Her

It’s 5:30 in the morning when the alarm goes off. By now, Nicole* has gotten her treatment day routine down to a science. She packs her water and snacks for the day, then gets her daughter ready and off to school. Nicole embodies that #womenpreneur spirit—she’s a wife,…

My Moments of Inner Strength From Childhood to Adulthood

Imagine barely being able to catch a football and then becoming captain of the high school football team. This happened to Robb* who was diagnosed with Type 2 SMA as a young child and grew up in the suburbs of Columbus, Ohio. *This is Robb’s personal story and experience. His…