Embracing My Inner Alien - a column by Kevin Schaefer

wheelchair malfunction, movie theaterKevin is a writer, podcaster, and lover of all things pop-culture. Diagnosed with SMA Type 2 at the age of 18 months, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. In addition to his weekly columns, he works as the Director of Forums for this site’s parent company, BioNews. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.  

My mom showed me how to advocate for myself

In the 1995 drama “Mr. Holland’s Opus,” the film’s titular protagonist confronts a boardroom of school administrators during a pivotal third-act scene. Glenn Holland (Richard Dreyfuss), a longtime high school music teacher, refuses to back down when his superiors declare their intention to eliminate the school’s music and…

Finding balance between excitement and routine in life with SMA

In every popular sitcom, there’s always a central setting for the characters to congregate. For some it’s a workplace, such as the Dunder Mifflin branch in “The Office” or the government building in “Parks and Recreation.” Other shows feature a shared living space, such as the geek-decorated apartment in “The…

Let’s end the infantilization of people with disabilities

“Hey, buddy, don’t get a speeding ticket!” “When was his last X-ray?” “Oh, wow, you work!” For whatever reason, society loves to infantilize disabled people. It’s practically a hobby for some people, be they medical professionals or middle-aged pedestrians looking to test their comedy skills when they see a wheelchair…