Brianna Albers (she/her) is a crip cyborg storyteller living in Minneapolis-St. Paul. In 2016, she founded Monstering, a magazine for disabled women and nonbinary people. She consults as a patient ambassador for SMA My Way and writes the column “The Wolf Finally Frees Itself” for SMA News Today. She is currently revising THE SAINT AND THE SPIDER, an adult space fantasy with #OwnVoices disability representation. Find her on social media @briehalbers.I’ve been thinking about Rare Disease Day on Feb. 29 for weeks. I’ve been trying to figure out how exactly I’m rare, and in what ways, and how I might address all the weird, rare, exhilaratingly absurd parts of me that make me…
I feel like it’s been forever since I last wrote one of these things. It may be because between the holidays, the start of a new month, year, and decade, and school (which is frankly turning out to be the semester from hell), I feel a little bit…
Like a decent percentage of the global population, I have part of the “Frozen II” soundtrack stuck in my head. The movie is about the unknown. Self-acceptance. Stepping into your power. Themes that are fitting for me, as the sun sets on the second decade of my…
I have this nagging feeling that I’m going to die in bed. My parents sleep in the basement, so when I need to be rolled at night, I scream at the top of my lungs until someone hears me. We have a baby monitor that works…
A few weeks ago, my mom and I went to Junk Bonanza, a vintage market that’s held twice a year at the local horse racing track. I feel twice my age while I’m there, but it’s a chance for Mom and…
As a kid, I assumed that happiness would be accompanied by a kiss in the rain, like the iconic scene between Hilary Duff and Chad Michael Murray in “A Cinderella Story.” Or that scene in “The Princess Diaries 2:…
In case you’re wondering, the miraculous acne medication, Accutane (isotretinoin), is as fun as it sounds. Accutane is a six-month program, which means I have three months left. The medication is definitely…
I was the kid with 50 different diaries. Usually pink with sparkles. Bonus points if they came with their own bejeweled pen, because what 9-year-old girl doesn’t like rhinestones? The issue is that I never used them. People would buy me diaries…
I wasn’t sure what to expect from this year’s Cure SMA Conference. I’d attended only once before, but I was too young to care about anything except for the service dog that I met and for which I subsequently longed. I knew there’d be…
Between the wheelchair, the pristine white Keds, and the pink baseball hat, I stand out. But I can’t say that I’m used to strangers stopping me in the middle of a reception hall so they can compliment my writing. “So you’re the famous columnist!” Am I?…
Get regular updates to your inbox.
