Sherry “Elisa” Toh (she/her) is a Singaporean native navigating life with SMA Type II and chronic neuropathy. She was diagnosed at 13 months by none other than Dr. Lee Wei Ling, after a referral from a GP. Sherry is a hopeless romantic whose loves include fairy tales, mythology, antiheroes, video games, and tea. She is planning on pursuing a BA in English Lit, but for now she's enjoying freelance work and volunteering for communities and causes she believes in. She hopes her columns will offer community and catharsis to those who need it. Find her @musiquevers on social media.
“You and our baby brother should count yourselves lucky,” I told my brother Gabriel after my first appointment with a psychologist for attention-deficit/hyperactivity disorder (ADHD). “If I have ADHD, it means I have two disabilities and lost the genetic lottery twice, yet you guys are fine.” Gabriel laughed…
If you had a chance to fictionalize your life in a children’s book, how would you do it? Would you make the protagonist yourself, or would it be a loved one while you are relegated to a secondary role? Would you depict an ideal version of yourself, a character with…
“So, how are you? What have you been up to?” I asked my friend Phoebe Chua back in November. It’d been a decade since we last saw each other. But we’d spontaneously reconnected and decided to go to a movie together. I wanted to know everything about her life…
If I owned a calendar, its December through April would be stained with tears. The square where Dec. 16, 2023, lands would have angry-looking ink blotches on it — to represent how I felt on my 25th birthday. My ex-girlfriend and I broke up on that day. I cursed her…
When you’re living with SMA, you quickly learn that you cannot function without someone else’s help. One of my earliest memories is of a nurse telling me that she’d asked doctors to remove my nasogastric tube for me. I must’ve been 3 at the time. My parents weren’t…
Taylor Swift, the light of my life, the one artist who’s gotten me through all my toughest eras, once wrote: “So make the friendship bracelets/ Take the moment and taste it/ You’ve got no reason to be afraid.” I took that advice last month. Well, except for…
“Sherry, did you forget about your evening medication yesterday?” my caregiver asked as she held up a plastic bag with a vitamin pill and painkillers. It was Feb. 17, the day after I attended an Ed Sheeran concert with my brother Gabriel. In response, my faced looked like that…
One of the hardest aspects of the SMA journey is a loss of independence. If I reach back into the deepest depths of my memory, the first time I can recall this happening was when I started using straws as a child. My mum had noticed I was having…
I was apprehensive when I was wheeled into my neurologist’s clinic on Jan. 18. I had taken my last dose of Evrysdi (risdiplam), a life-changing oral treatment that can improve motor function in SMA patients, during the last week of September. That was four months ago. “Why…
I used to have this bracelet I loved. My dad bought it for me on a whim on my 16th birthday. We were walking through a high-end department store where he spotted a Swarovski counter. He immediately went up to the salesperson and said, “I want to find something for…
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