We're Not in Kansas Anymore - a Column by Helen Baldwin

sky, bloom, silence, feathers, timeHelen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.

3 Little Boys at 5 Months, 5 Years, and Almost 5 Years Old

In the fall of 1996, as my husband, Randy, battled a stressful job situation, our surprise pregnancy packed an additional wallop. It also sparked much-needed joy, once we recuperated from the news flash. Jeffrey’s birth two weeks early, as Randy’s job mercifully ended, provided a perfect boost. He was beautiful,…

Appreciating the Spunk and Optimism of a 7-year-Old

“I haven’t had cancer since I was 11 months old!” our cheery granddaughter recently proclaimed. Clara turned 7 at the end of December. She’s witty, imaginative, spunky, highly entertaining, candid, cute, and sharp. Sometimes, though, her facts are a bit skewed. She’s never had cancer.  What she does have…

Memories of the Past, and a Miracle in the Present

The Christmas spirit eluded me in 1997. Our baby Jeffrey, diagnosed with SMA that summer, had snagged his wings that November. Needing to find something positive, I focused on why I should be thankful. Jeffrey was in heaven, free from the ravages of SMA. I knew that, and…

Giving Thanks Beyond the (Frozen) Turkey: Friends Through SMA

Last year, my brother and I plotted to round up our respective families for Thanksgiving. It was a daunting effort. Our family branches are scattered over three states, and, as usual, work schedules conflicted. Alas, thanks to some angel intervention and alignment of enough stars, we managed to come together.