Cure SMA Chief Tells Families Seeking Insurance Coverage for Spinraza: ‘Don’t Get Discouraged’
In the roughly four months since the U.S. Food and Drug Administration (FDA) approved Spinraza (nusinersen) to treat all types of spinal muscular atrophy (SMA) in both children and adults, dozens of hospitals and clinics across the nation have begun dosing patients. Yet insurers are reluctant to pay for…