Providing care and support for someone with a chronic health challenge comes with its own unique set of stresses. You may be juggling doctors’ appointments, timing multiple medications, and keeping on top of insurance paperwork in addition to a job and/or family responsibilities. And that’s on top of adapting to…
In the fall, Stella, Ariya and Cinch are all starting kindergarten. Spoiler alert: they’re excited. Their parents are excited, too, and nervous – the transition to school is a big milestone for any child, but going to kindergarten is extra special for these little ones. Years ago, these…
Aniya’s parents have consented to share their story. Today, Aniya is an energetic, determined, happy little girl—thanks to her parents’ perseverance to get their baby the treatment that she needed. Hailey and Will got a call from Aniya’s pediatrician 7 days after she was born.
In September of 2020, Darlisha and Jarrett Barnes got an urgent voicemail about their newborn, Harley. Harley had tested positive for spinal muscular atrophy (SMA) – a rare genetic disease that, when left in its most severe form, leads to progressive muscle weakness, paralysis, and permanent ventilation or death…
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