The Wolf Finally Frees Itself - a column by Brianna Albers

dream, cybernetics, meditations, disability visibility, early start times, truth

Brianna (she/her) is a crip cyborg storyteller living in Minneapolis-St. Paul. She was diagnosed with SMA Type II at 9 months of age and lives with co-occurring physical and mental health conditions. By day, she works as an advocate, bridging disability and mental health awareness to empower people to live their best lives; by night, she dabbles in imagination, and is in the process of making the book of her heart, “#WaningCrescent,” the best it can be. Find her online at www.briannahopealbers.com and on social media @briehalbers.

My Body Is Weird — and I Love It

No matter how hard I try, there are things I continually forget. Take, for example, the few times I’ve hosted parties. I’m an introvert through and through, so hosting isn’t exactly my forte, but I love spending time with friends. I was so excited for my very first dinner party…

Rediscovering My Love of Lego Star Wars

In my mind, Luke Skywalker was in love with me. For context: I was never much of a Lego girl. But I was a “Star Wars” girl. It stood to reason, then, that the Lego Star Wars games were right up my alley. I loved everything to do with…

Healthcare Is Rarely a Walk in the Park

When it comes to healthcare, I’ve had remarkably good luck. There are, of course, bad apples. See, for example, the gastroenterologist who rambled about “The Odyssey” as he punctured my stomach lining. Or the surgeon who, in my young, still-developing mind, undeniably had it out for me. (A classic…

My New Tattoo Is a Dream Come True

There’s nothing quite as satisfying as checking an item off your bucket list. Earlier this year, I put on my big girl pants and rescheduled a long-awaited tattoo appointment. It was a whole ordeal — one you’ll remember if you’ve been reading my column for a while. In late January,…

My Latest Wheelchair Woes May Soon Be Over

A year after I started fine-tuning the seating of my new wheelchair, I found myself back where it all started. I wrote a few weeks ago about my continuing struggles with the chair. Since then, one of three programming problems has been solved. My seating appointment was meant to…

Celebrating My 1st Evrysdi-versary and Looking to the Future

My first Evrysdi-versary passed without incident. Ironic, considering how much time and effort I put into acquiring the medication. A disease-modifying treatment (DMT) for SMA is no small thing. Spinraza (nusinersen) took the community by storm, with patients around the world petitioning their insurance companies. I wasn’t immune to the…

Thanks, but Your Prayers Really Aren’t Necessary

Last Sunday, my dad took me by surprise. “I don’t have anything planned for today,” he said as he helped me get out of bed. “Let’s do something fun.” I assumed he meant something simple, like getting ice cream or dropping by the grocery store for a bouquet of flowers.