Helen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.It seems like yesterday that our family was eagerly anticipating the addition of our third baby. On May 18, 1997, the wait ended with the arrival of our sweet Jeffrey! Eight weeks later, though, a diagnosis of the deadliest form of spinal muscular atrophy (SMA) crushed our dreams…
This time 27 years ago, I was entering the third trimester of an unplanned pregnancy. My husband, Randy, and I had considered our family complete with two terrific children, Matthew and Katie. God, however, placed a cherry on top of our “fab four” with a big surprise: Jeffrey. Once we…
Although I rarely have a chance to read the work of fellow columnists here at Bionews, the parent company of this website, it’s evident that I’m in the midst of some stellar writers. Halsey Blocher, who is the columns lead for my group of writers, and Kevin…
My husband, Randy, and I sat across from the pediatric neurologist, eagerly anticipating his opinion of what was affecting our 8-week-old baby, Jeffrey. I say eagerly because I’m an optimist, and I’d taught kindergarteners at a self-contained school for children with multiple disabling conditions. I felt confident that we’d…
At a routine dental cleaning over a year ago, the dentist informed me that a molar with an old root canal would need to be removed at some point. To prolong the tooth’s stay in my mouth, she applied a special gel then and at subsequent cleanings. All was fine…
The first surprise our third baby, Jeffrey, delivered was his mere appearance. In 1997, my husband, Randy, and I juggled two school-age children and their respective activities, his new job, and a bustling family lodge. A baby was nowhere on the to-do list. Surprise No. 2 was Jeffrey’s arrival two…
My days growing up in Fort Worth, Texas, are chock-full of fond memories, like waiting in line at Mrs. Baird’s Bakery to talk to Santa. He was the real deal, not some measly helper. The heavenly aroma of bread baking was proof that Mrs. Claus was bustling in the…
Because my husband, Randy, and I had neither furniture nor money when we got married, we lived in furnished apartments for the first couple of years. We purchased the furniture in one of our last apartments for a ridiculously low price. When we bought our first house, my parents…
I don’t know what it is about the end of daylight saving time that rustles my brain when the sun goes down. Maybe it’s because we think of secretive things emerging at night, and now it gets dark at 5:30. As time backed up this month, my “barn doors…
The insidious nature of SMA type 1 that was affecting our baby Jeffrey intensified in October 1997. While relatively calm moments occasionally appeared after a disastrous pulmonary consultation earlier in the month, Jeffrey began experiencing respiratory distress to the point of needing morphine. My frazzled mind filled with…
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