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On Being an Aunt With SMA
Read Alyssa Silva’s latest column about being an aunt, and how having SMA impacts this part of her life: https://smanewstoday.com/2018/10/19/sma-love-expression-unique-powerful/?amp.
As an Uncle with SMA, I can relate to what Alyssa says here. I can’t hold my niece or anything, but I play with her all the time, and she loves pressing the buttons on my chair. I do often wonder how parents with SMA do it, but like everything else in our lives we’re good at figuring out how to do things differently.
What do you all think of Alyssa’s column?
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6 Replies
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So, it appears I have competition for greatest Aunt ever! Seriously, great article, and even if we can’t be an aunt or uncle in the traditional sense, we find our own way. When my nieces got old enough where they only needed supervision, they would even come to spend the day with me. I’m sure it made my sister nervous at first, but I assured her I had all the emergency numbers close at hand. It’s funny, just by the tone of my voice or stern look those girls knew I meant business. Of course we have lots of fun too.
Personally motherhood isn’t in the cards for me. Parenthood with SMA is probably another topic altogether. For now I’ll settle with passing on life lessons to my nieces.
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I like how you talk about your relationship with your nieces in your videos. It’s a cool thing, and we find ways to work around the things we can’t do physically.
When your nieces were little, did they ever try to press the buttons on your chair?
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Ha, ha Kevin. They’re almost 14 and still press the horn when I’m not looking.
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Sounds right haha.
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I’m by far the oldest of my siblings, so I’m not an Uncle, and probably won’t be anytime soon. I have a lot of cousins, however, which I imagine is similar.
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I m uncle have one nephew,he also has SMA type 2,and he specially loves that i find some video games and install on their laptop or tablet.We are much related and spent a lot of time together.
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