[joane]

Good afternoon every one,  I had been on spinraza for a couple of years and felt good and even a little stronger!  I then switched to evrysdi since it sounded great, so easy compared to the spinraza procedure….I now feel much weaker and may go back on spinraza, not sure and very confusing.  I also wonder if I went back to spinraza if I would gain back what I lost!

I am 64

[joane]

Good afternoon everyone. I have just started to have diarrhea problems and noticeable weakness in my arms.I was on spinraza for about 4 years and I wish I had stayed on it even though it is a pain to get to the hospital,whole procedure during the day but was grateful for it I went on Evrysdi the beginning of November and just started to have these issues, so maybe I have a bug I am just not sure at this point. I also did notice a slight Improvement on spinraza so I may be switching back to it

[joane]

Thank you DeAnn…  I will definitely let you know what I decide..  I have a virtual appointment with my neurologist the first week of January..

Joan

Stockton NJ