Stomach Issues on Evrysdi
Typically I don’t pay much attention to medication side effects. However because my stomach can be sensitive I’m acutely aware a main side effect of Evrysdi is diarrhea. Low and behold a week into taking it, it happens. Agunk, my stomach sinks and I get that gotta go sooner rather than later feeling. Typically it’s shortly after I eat. It’s been like that for a week and a half now. So far I’ve been able to ward off any major accidents. It’s really difficult though when going to the bathroom is a process in and of itself. As per directed I take my dose after a meal. Although I notified my doctor, they didn’t really have advice for me. Fingers crossed it’s not a long term issue. I don’t know how I could manage if it was. Has anyone else had tummy troubles? How have you managed it?
Otherwise Evrysdi is going well. No major changes, but I didn’t expect much. Not sure if this will make sense or not, but I’d say I have more muscle sensation. Again nothing significant, but it seems like if I use a muscle a lot I can “feel the burn” sort of speak whereas I never did before. I recall feeling this after the Spinraza loading doses, but it didn’t last. These are just my personal experiences though. Feel free to share yours below.