@kevin-schaefer
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Kevin Schaefer replied to the topic Day 1 of #31DaysofSMA: Surviving Law School While Grappling With Illness in the forum 31 Days of SMA 2022 7 months, 3 weeks ago
It’s a great story. I enjoyed meeting Shaniqua and many other contributors this year at the conference.
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Kevin Schaefer started the topic Day 1 of #31DaysofSMA: Surviving Law School While Grappling With Illness in the forum 31 Days of SMA 2022 7 months, 3 weeks ago
Hey everyone, and happy SMA month!
We’re excited to kick off our 31 Days of SMA campaign with Shaniqua Granby’s story. Shaniqua writes about her experiences in law school, and how she managed life with SMA. With the support of family and friends and with a spirit of determination, she was able to pursue her dream.
Here’s an excerpt, “Thus, a…[Read more]
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Kevin Schaefer replied to the topic How do you define success? in the forum Adults With SMA 8 months ago
Hey Blake, great blog post! Thanks for sharing.
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Kevin Schaefer replied to the topic Have you seen CODA? in the forum Disability in Media 11 months, 1 week ago
I finally watched CODA last night. I liked it ok but didn’t think it was amazing. Phenomenal cast and it’s a touching, feel-good coming-of-age comedy, but I get some criticisms from members of the deaf community. Like, there’s nothing wrong with telling a story from the perspective of a non-disabled family member, but it didn’t add up that they we…[Read more]
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Kevin Schaefer replied to the topic Dating Tips? in the forum SMA and Dating/Relationships 11 months, 2 weeks ago
Hey Crystal, great to hear from you!
First off, I do think virtual dates and talking/texting are good ways to start. It gives you a chance to connect with someone first. Then you can discuss ways to meet in person. I have friends and caregivers who drive me a lot when we’re hanging out.
Regarding an assistive device, I use my wheelchair tray for…[Read more]
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 11 months, 2 weeks ago
Thanks, Blake! Yeah, it’s definitely cathartic to let it all out.
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 11 months, 3 weeks ago
Thanks for sharing!
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Kevin Schaefer posted a new activity comment 1 year ago
Hey @dbrb85, I have a Permobil and it’s great. I always have to make adjustments when I get a new chair, but these models have a long lifespan.
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Kevin Schaefer started the topic Any SMA Gamers Out There? in the forum Disability in Media 1 year ago
Hey everyone!
One of our journalists is working on a story about a new video game that’s designed for young gamers with SMA. Check it out here.
Is anyone interested in talking about this? Just send an email to Hawken Miller at [email protected]. Thanks!
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Kevin Schaefer started the topic Ask an Expert Survey in the forum SMA Forums Welcome Lounge 1 year, 1 month ago
Hey everyone! Hope you’re all doing well.
SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you coul…[Read more]
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Kevin Schaefer replied to the topic Challenging Myself In Other Ways in the forum Adults With SMA 1 year, 1 month ago
Congrats! I know something like this would be good for me. I spend way too much on books, movies, collectibles, and eating out each month.
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Kevin Schaefer replied to the topic Finding Love in the forum Adults With SMA 1 year, 1 month ago
Hey Blake, I fixed it. Thanks for sharing.
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Kevin Schaefer and
Lupa F are now friends 1 year, 1 month ago
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Kevin Schaefer replied to the topic Hello! in the forum SMA Forums Welcome Lounge 1 year, 1 month ago
That’s awesome!
Yeah, so I write a column for this site, which you can read here. I also write comic/graphic novel scripts. I like sf/fantasy, horror, and comedy.
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Kevin Schaefer replied to the topic Hello! in the forum SMA Forums Welcome Lounge 1 year, 2 months ago
Hey Daniela, welcome! I’m 28, type 2, and I work remotely for this site’s parent company. I’m also a writer and podcaster. Great to have you!
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Kevin Schaefer started the topic Podcast: Hiring and Managing Caregivers in the forum Flash Briefings and Podcasts 1 year, 2 months ago
Hey everyone! Hope 2022 is off to a great start for you all.
Check out this podcast episode. Me, @drunge, and @smajourney51 talked in-depth about hiring and managing caregivers.
We discussed our first experiences…[Read more]
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Kevin Schaefer replied to the topic “Special” on Netflix in the forum Disability in Media 1 year, 3 months ago
I finally started watching this as well. It’s great! The writing is poignant, hilarious, and touching. I love how quirky the characters are, and how it tackles the nuances of living with a less visible disability. Highly recommend!
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Kevin Schaefer started the topic New Survey: Ask an Expert in the forum Raising Awareness of SMA 1 year, 4 months ago
Hey everyone! Hope you’re all doing well.
SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you could a…[Read more]
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Kevin Schaefer replied to the topic Starting the Search for New Caregivers in the forum SMA Parents and Caregivers 1 year, 5 months ago
Thanks for sharing! Definitely a big transition, but it’ll work out.
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Kevin Schaefer changed their profile picture 1 year, 5 months ago
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