Forum Replies Created

  • mehdi

    Member
    May 23, 2019 at 9:55 am in reply to: Spinraza Dose #8: Another Successful Maintenance Dose

    Which improvement do you feel ?

  • mehdi

    Member
    April 24, 2019 at 1:03 pm in reply to: SPINRAZA FOR FOREIGNER

    thank you

    I agree with you Lupa. Spiranza price is unethically high ” maybe it’s theft or murder !!! …” there is one SMA for each 10 000 person so the campany can  earn about 22.901.200.000 Dollar just in USA that’s unfair even if injections are literally ongoing for life (RYAN). At this price we can build factories , hosptals or small city

    special thanks for the best kelly over the world. I went to  paris last year however the neurologist didn’t know Spiranza. also my insurance don’t work on european area.

    I think associations, senators and nonprofit organization must renegotiate the price

    Sorry for my bad english. I prefer to speak french or arabic

  • mehdi

    Member
    April 23, 2019 at 4:33 am in reply to: SPINRAZA FOR FOREIGNER

    Thank you guys

    Rayan Iam very sad for your bad experience with Biogen. Unfortunately Spiranza is the unique hope For SMA patients.

    Do you know why the price is horribly expensive ?

     

     

  • mehdi

    Member
    April 21, 2019 at 11:37 am in reply to: SPINRAZA FOR FOREIGNER

    Hi DEANN,

    many thanks for your pretty advices. I work on finance topics ( you can see my articles on the Net).

    Well I hope to  hit the pause button of SMA monster. but the expensive price of Spiranza is real obstacle. I think the unjustified and inhuman price should be negotiated.

    Best wishes,