

mehdi
Forum Replies Created
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mehdi
MemberMay 23, 2019 at 9:55 am in reply to: Spinraza Dose #8: Another Successful Maintenance DoseWhich improvement do you feel ?
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thank you
I agree with you Lupa. Spiranza price is unethically high ” maybe it’s theft or murder !!! …” there is one SMA for each 10 000 person so the campany can earn about 22.901.200.000 Dollar just in USA that’s unfair even if injections are literally ongoing for life (RYAN). At this price we can build factories , hosptals or small city
special thanks for the best kelly over the world. I went to paris last year however the neurologist didn’t know Spiranza. also my insurance don’t work on european area.
I think associations, senators and nonprofit organization must renegotiate the price
Sorry for my bad english. I prefer to speak french or arabic
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Thank you guys
Rayan Iam very sad for your bad experience with Biogen. Unfortunately Spiranza is the unique hope For SMA patients.
Do you know why the price is horribly expensive ?
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Hi DEANN,
many thanks for your pretty advices. I work on finance topics ( you can see my articles on the Net).
Well I hope to  hit the pause button of SMA monster. but the expensive price of Spiranza is real obstacle. I think the unjustified and inhuman price should be negotiated.
Best wishes,