robin-c
Forum Replies Created
-
Alyssa, yes, I have been trying to resolve several health issues for over a year. It’s daunting and overwhelming. Unfortunately I can’t delegate this responsibility, but more than once I have said “I don’t want to Adult Today!”.
-
Diana, thanks for the warm welcome. It’s nice to meet other “elder” adults. I feel like SMA and aging needs more research and documentation. I realize that statistically we’re a small group and until the internet we really couldn’t network and share our experiences.
I have SMA type 3, (3 copies of SMN2) and have been non-ambulatory since my mid-40’s. Some days I really struggle, but I have a supportive husband and family. ????
-
Hi Dennis,
I was “lucky” because my brother and I were diagnosed by EMG and symptoms in 1964 (I was age 8), by a very knowledgeable woman doctor (she was a ground breaker). She was my neurologist until I married and left my hometown.
I agree things have changed for, the good, since then.
-
Hi Dennis, I have you “beat” by 3 years. Lol It’s nice to meet you.
-
Alyssa, thank you for your kind words. Yes, being an old soul definitely counts! It’s nice to meet you here, as I have read your articles and followed you on other media for awhile. ????
-
Hi DeAnn! It’s great to be here.
yes, I stay busy, although I retired after a 34 year career in state government, much of it as a middle manager. My main “hobbies” are genealogy research and “making my husband’s life ‘miserable’” – a mutual joke after 40+ years of marriage. I also help manage my 92 year old mother’s care, serve in multiple officer positions with 2 nonprofit organizations, and volunteer with 3 other organizations. Let’s just say I am still trying to find a healthy balance between being busy and overly stressed out. I could be labeled a “slow learner” when it comes to saying “no”. ????