Forum Replies Created

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  • ryan-berhar-2

    Member
    May 10, 2018 at 5:38 pm in reply to: Hobbies and Creative Outlets

    I watch a lot of sports and Netflix. Video games were my main hobby at one point, but I’ve lost so much of my hand function that it’s not even much fun for me anymore. I’ve loved playing chess for most of my life. Chess is fantastic for people like us because it is 100% skill. No physical ability is required!

  • ryan-berhar-2

    Member
    May 9, 2018 at 6:43 pm in reply to: Coming to terms with the mental effects of SMA

    I’m actually writing a column about this which I can share here soon. It is easy to feel overwhelmed by everything we can’t do, and forget about what gifts and abilities we do have. I think it is imperative to identify a few strengths and take them as far as possible. For example, I want to focus on writing as much as I can, and take this as far as I can. The hope of one day writing books or doing sports journalism gives me hope, and helps me deal with all the physical limitations. I know it sounds cliche, but we need to focus on what we can do rather than what we can’t do.

  • ryan-berhar-2

    Member
    May 8, 2018 at 11:55 am in reply to: Inspiring SMA stories

    Jon Morrow is an enormous inspiration!

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