ryan-berhar-2
Forum Replies Created
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Intriguing point. I think “vulnerable” is an interesting word choice. Being susceptible to physical or emotional attack or harm (I looked it up to be sure lol) doesn’t seem like something we should strive for. I guess since that’s something we with SMA inevitably have to deal with, it’s best to accept it and make the best of it. Is that kinda where you’re going with this?
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About the same as you. I had some fireball on New Year’s Eve. That’s some potent stuff lol.
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The part where she says she envies the ability to just up and go somewhere is very relatable. It’s utterly exhausting having to plan every little thing out. Sometimes it’s like I have to move mountains just to go to Starbucks. Also how this has resulted in her becoming more introverted. I get that too.
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She’s still so young. I hope she keeps that hope alive.
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I don’t necessarily have any SMA related advice, but I think it’s super important to always look at a portfolio of the artist you’re considering. Sounds like you’re prepared in that regard though. I have two tattoos, a cross with clouds and rays around it (essentially one big one). For whatever reason, the clouds hurt significantly worse than the cross. Pain varies a lot.
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One healthier snack I love is cheese and grapes. I thought it was a weird combination at first, but it’s one of my favorites now.
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The things I learn on the SMA forum. Haha
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As I think I mentioned here before, I’m going to be the best man in my cousin’s wedding this summer. I’ve only been to two weddings that I can remember, and they were both ages ago, so I don’t have much experience. I’m really excited though. I haven’t heard anything about a bachelor party, but it’ll probably be some redneck activity like branding cows haha
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I usually wake up at 9 or 9:30, and it takes maybe 30-45 minutes to get showered and dressed etcetera. I basically never get up earlier than that. It sort of shocks my system if I do.
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Thank you both!
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This is always going to be problematic to a certain extent. Only having someone around when you need them is pretty much impossible. Like you said, gently remind people you need space. That’s all you can really do.
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Great column bro. I definitely lacked confidence in high school with this. For example, I sat directly next to one of the most beautiful girls I’ve ever seen for half the school year, and didn’t talk to her once. This was partly just my introverted nature, but I also had this notion of “she couldn’t possibly want anything to do with me”.
Going to the SMA conference in 2016 was really eye opening for me. I met people with SMA who had spouses and children. That was when I actually realized it is possible for me to have a wife and kids.
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That’s such a bummer. The tattoo studios around here are either flat out inaccessible, or they’re old and somewhat inconvenient for wheelchairs. With the one i go to, I have to go through the back door. It’s a little annoying, because there’s this other business back there, but it works. Not sure why, but it seems like tattoo places are like that in general. I definitely agree with you on not settling when it comes to tattoos. Just an idea… maybe you could offer to pay extra and have her come to your home (I’m assuming it’s in the area). Never hurts to ask. Trying to think outside the box.
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Thank you both!
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Yes, and it seems everyone is on board with it, which is huge progress. Hopefully everything settles down around here and we can move forward with the plan.
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it definitely helps.
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He’s five I do believe. We get together every few months. They’re good people.
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Thanks!
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Nothing necessarily stood out in particular, but again, it’s just nice to read those reminders. What strikes me about Shane is his willingness to put himself out there I guess you could say. With regard to girls or otherwise, he succeeds by going for it.
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It’s always nice to be reminded that we can, you know, do certain things in spite of our disability. Haha
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Thanks!
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DeAnn, that’s something I often think about—how everyone does everything slightly differently. It’s not necessarily even a bad thing, it just takes time to get used to all the subtle differences between caregivers. Even my family, whose been taking care of me for almost 23 years, have to be reminded of certain things. It’s just interesting.
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Yes, same here. If I get up really early it throws me off for a couple days.
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Yeah I mean you don’t want to be too pushy. Hard to say. Best of luck either way!