tammi-bradley
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NOOO! My “mini me” is my LIFE!
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Hello,
Congratulations!!! I am Mama to 2 adult children and now, Gam-Gam to my adorable grandson.
FAQ’s:
55-years-old
SMAII, Scoliosis with Harrington Rod fusion
Age 26 my daughter was born C-Section under general anesthesia
Age 32 my son was born C-Section under general anesthesia
My contact email [email protected]
I am an open book, ask me anything!!!
~Tammi
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Hello Zicari,
I hope that you are continuing to stay safe during this historic pandemic!
Data: 54-years, SMA II, 3 copies SMN, Harrington rod spinal fusion, previously on Spinraza (8 doses) and am now on Evrysdi since June 2019.
Since stopping Spinraza and beginning Evrysdi, I am happy to report that after 12-months on treatment my MFM evaluation score went up by TWO POINTS! Unlike my 6-months evaluation, I am now able to tear a piece of paper (unfolded) AND lift my left hand/arm from my lap up onto the table they placed in front of me!
Anecdotally, I’ve experienced: More stamina. My ability to take a deep cleansing breath has returned. More productive and forceful cough. Dramatically louder voice projection. Faster speech. (While working, the scripted voicemail messages I leave are taking much less time. From 45 seconds down to 25 seconds.) I am able to grip AND lift the stick I use to turn the A/C on and off again.
While my grandson is in his highchair, I am able to extend my right arm out and grip the crayons to color with him! (One of my favorite gains!) Without any treatment I know my progressive fate. For me, treatment makes sense!
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Greetings Crystal,
During my pregnancies, I had SMA II and a Harrington rod spinal fusion. My first child (daughter) was born via c-section when I was 26-years-old. When she turned 20-months, I became a single mother. I worked full time, drove an adapted van and had 10-hours of daycare during work hours (M-F) and PCA support the rest of the time. My parents were already passed away, so it was just me. It was exhausting, but absolutely worth every tear, meltdown and sleepless night! So much so that I did it again…
When my daughter was 4-years-old, I met a wonderful man at work and finally found my knight in shining armor! Two years later, we had a son. Our son was born via c-section when I was 32-years-old. The only “complication” I had was during my second pregnancy; I developed Gestational Diabetes that was successfully managed through diet.
My most recent blessing occurred on October 7, 2018, when I became a GRANDMA! My “sweet boy, Sutter” is [the] love of my life!
I am a firm believer that anything is possible! Establish multiple backup plans, educate yourself, ask many questions and live life the way you want. All the rest will fall into place!
Warmly,
Tammi