[trysmiling]

Thank you all for your replies and warm welcomes. And a big thanks to you, Michael, for directing me here.

DeAnn,
Thank you very much! I’ve been through a gauntlet of articles and medical papers which range from helpful to frustrating. I’ve obtained some very useful information from them but I was really hoping to find some first-hand accounts. I’m simultaneously looking into Kennedy’s Disease and found a great resource for first-hand accounts from *people* (as opposed to MDs) which have been helpful but I haven’t been able to track down a similar source for SMA Type IV 🙁

Kevin,
No, thank *you* for accepting me with open arms, other communities I’ve tried to interact with along this journey have not been so welcoming to me as I do not have any DX at this time.

Michael,
Thank you again for suggesting that I join!
As of this time I’ve seen three neurologists. One is my main and the other two have been for 2nd/3rd opinions but I’m considering sticking with the 3rd opinion MD because he seems to be the most thorough and willing to act upon my symptoms on a shorter timeline. Case in point, he’s the one seeing me on the 20th of April while my ‘main’ neurologist wants to see me next in June.

So at this point, unfortunately, talking to any of them might be a bit difficult until later this month. 🙁