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The injection was the easy part
As I’m trying to follow doctors’ orders to take it easy after my 5th dose of Spinraza, it just allows me time to reflect on the whirlwind of a day. Today didn’t start off on a good note. I found out my new hoyer sling pushes my head forward far enough to block my airway. Thankfully it was only momentarily, but let me tell you not being able to breathe is SCARY! I had to push that moment to the back of my mind, it’s Spinraza day after all. Medi-Van arrives and we head two hours to the appointment. After getting checked in we use their sling and hoyer to transfer to the bed. My guess is that their sling is made for a 300 lb person because I’m practically falling out of it. At least I don’t have to change and am able to wear my own sweats. Once I’m on the bed they wheel me to the CT room. Hold on, they scheduled me in the X-Ray room? Now I have to wait while they cancel those orders and schedule me in the CT. At least I got a warm blanket while I waited. Once I’m in the CT room they use a transfer board to get me over to the table. Since they go through the neural foramen I’m on my side. A guide sticker is placed on my exposed side and I’m scanned to find the sweet spot. I’m swabbed with orange stuff and numbed with something that sounds like they’re opening a pop can. The doc gradually inserts the needle and takes a few hazy scans along the way. When I did feel a pinch I got more lidocaine. Barely felt a thing. He’s at his target, collects the required amount of spinal fluid and injects the liquid gold. Okay, not liquid gold, Spinraza, but might as well be gold. Hardly felt a thing and Mom didn’t even get a chapter read in her book. After that I was required to lie flat for…one hour! Last time it was 30 minutes, but I guess protocol changed. Back to my chair with discharge papers, and headed back home. As with everything when you have a disability getting Spinraza is a process. A worthwhile process to be able to hit pause on SMA in my opinion. Just can’t believe the 7″ needle into my spine was the easy part. What’s your process like?
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