Individually and collectively, it’s vital to be sensitive to what’s happening in the world around us. This awareness allows us to be empathetic and strive for change that improves society for ourselves and others. The SMA…
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“Are we wearing a cloak of disability?” my mom asked as a vehicle pulled out in front of our wheelchair van. At least, that’s what I thought she said. It turns out that she actually said “cloak of invisibility,”…
Elephants have long been my favorite animal. I even have a collection of items depicting them. I’m captivated by the majestic giants whose eyes seem to convey vast wisdom and an array of relatable emotions like empathy, joy, humor,…
I’ve been blessed to grow up in a city that’s mindful of accessibility and inclusion, which means there’s an abundance of accessible activities to participate in. Throughout my life, this has provided opportunities for me and my family to…
In a tourist shop on the coast of Lake Michigan a few summers ago, my mom spotted a sticker depicting the town’s lighthouse in the style of my favorite painting, Vincent Van Gogh’s “The Starry Night.” She…
There’s a trend taking root in the SMA and disability communities that has me worried. It’s the idea that to gain independence as disabled adults, we must separate ourselves from our support networks and find ways…
If you haven’t met this celebrity of the SMA community, I’d like to introduce you to my friend Angela Wrigglesworth-Titcombe. She’s 46 years old, has SMA, and is a fifth-grade teacher. She and her…
Mom and I always bring another person or two to my specialist appointments at the SMA clinic. It’s out of state — about three hours from our home — so it’s easier when we have extra…
One of my favorite discoveries during my family’s recent vacation on St. Simons Island was the Georgia Sea Turtle Center on neighboring Jekyll Island. The center rehabilitates sea turtles and local wildlife in need of…
Maybe you’ve noticed from my past columns that my family enjoys traveling. We’ve been blessed to visit a variety of destinations together, but we’re repeatedly drawn to locations with scenic coastlines and warm climates. My…
(Note: This column contains spoilers for the movie “Five Feet Apart.”) The 2019 movie “Five Feet Apart” focuses on a young couple, Stella and Will, who fall in love while receiving treatment for cystic fibrosis (…
For kids, February tends to entail a Valentine’s Day party for every activity, club, or team they’re a part of. Our mom used to take my brother and me to plenty of these parties when we were little, as…
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