Christmas is my favorite holiday for many reasons, and gift-giving is just one. I genuinely enjoy hunting for the perfect gift for everyone on my list. It’s one of the ways I express love, and watching family and friends open hand-selected surprises brings me as much joy as opening my…
From Where I Sit — Halsey Blocher
Halsey Blocher is a young woman who was diagnosed with SMA Type 1 in 1999 after a blood test revealed a deletion of the survival motor neuron gene. She now lives with her loving family in Fort Wayne, IN and spends her free time reading, cooking, creating, and enjoying life’s blessings. Halsey is passionate about her work as a Column Lead at Bionews Inc. as well as volunteering with various local organizations. Writing is her lifelong dream, so she uses this gift to advocate and offer glimpses into everyday life with SMA in the hope that it will inspire readers to seek the positive in every situation
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Nearly anyone that knows me knows that pasta has been my lifelong favorite food. We stock a variety of shapes and flavors in the pantry so I always have different options to choose from. Among them are single serving, microwaveable mac ‘n cheese cups. A few weeks ago, I realized…
After many months of searching and navigating the challenges of house hunting with a disability (that’s a story for another day), I am extremely pleased to say that we have finally found our new home. And we’re just in time to celebrate the holiday season around the cozy, wood-burning fireplace!…
A few months ago, my brother came to my room to repeat what our mom had just instructed him to tell me. With a slightly sarcastic yet serious tone, he informed me that he could no longer refer to me as a wheelchair user, because one of his college textbooks…
Life after high school leaves us with plenty of paths to choose from in our pursuit of various goals. College and careers are a few of the many options to be considered. After exploring volunteer work and other activities at the local disability center, I began searching for…
Disabled people and their loved ones are some of the most creative people on the planet, and I don’t just mean artistically. We have to find creative solutions to everyday problems we encounter as a result of our disabilities. Our world isn’t always accessible, and sometimes sees…
My family and I have just returned home from a fun-filled, relaxing vacation in Orlando, Florida. We haven’t taken a vacation in over two years, and it was long overdue. Vacations offer opportunities to explore a different part of the world and take a break from normal routines. But sometimes…
About a decade ago, I woke to the sight of dozens of butterflies bathed in gentle light above my head. I wasn’t expecting that. When I lost consciousness, my mom and I had just arrived at the hospital in an ambulance after being rescued from our home by…
Last week, my mom, brother, and I decided to grab coffee on the way home from picking up groceries. The Starbucks closest to our house has one of the only drive-thrus that can accommodate the towering height of my high-top wheelchair van. Our order was taking longer…
Ed. note: This column was written in collaboration with fellow columnist Alyssa Silva for SMA Awareness Month. Read about her experiences with multigenerational living and how the two stories intersect at “Life, One Cup at a Time.” “But don’t you want to live on your own someday?” That’s a…
After an extra year of waiting, the Tokyo Olympics are finally underway! I’m generally not much of a sports fan, but I always look forward to the Olympics. Even for those of us who don’t usually watch sports, at least one event will spark our interest. I…
Society often defines successful people as those who have achieved several traditional milestones. Those milestones tend to include obtaining a college degree, becoming financially independent, buying a home, getting married, and raising children. If you’ve achieved anything on that list, congratulations! Please know that these are all praiseworthy accomplishments. My…
For many years, the annual Cure SMA Conference has been bringing the SMA community together to learn and to connect. Throughout its history, the conference has traveled to a variety of locations across the U.S., hosted countless seminars and socials, navigated new virtual platforms, and provided…
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