You have to be in an introspective mood to examine your own flaws and weaknesses. It takes both maturity and courage, neither of which come easy. I don’t like to do it any more than all of you, but bravery is often rewarded with riches beyond comparison. By riches,…
Soaring With Hope — Ari Anderson
Ari Anderson resides in Charlotte, North Carolina, and was diagnosed with SMA type I at 6 months old in 1982. At the time, the prognosis was almost hopeless. Today’s medical therapies have changed the prognosis to hopeful. Yet, the rest of society has a long way to catch up in how they see people with SMA. Through his column, “Soaring With Hope,” Ari shares how he changes views through advocacy, innovative technology, and determination. He inspires hope by helping others rise above their hardships. No matter who you are, through his conversational style of writing, you may find that you have experienced the same feelings and emotions throughout your life as Ari has!
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If you’ve read at least a few of my columns, you know that I hold on tightly to hope. It’s what keeps me plowing through the rough terrain of problems and crises, as my faith tells me that, one day, many of these difficulties will be solved. Now, it seems…
In my previous column, I discussed how difficult times can help strengthen the qualities of patience and endurance. But life lessons can be learned even when we’re not going through a crisis. It may take going through terrible events first, but it’s up to each of us whether we…
Simply put, I refuse to let the wind of negativity blow me down. My faith in God empowers me to keep the light of positivity shining during and after the storms of SMA. It’s a miraculous thing when you can envision yourself on the other side of a…
Thinking about parallel universes can be scary. Sometimes, though, it’s necessary to think about the scary what-ifs in order to be more aware of the positive things in life. More on this in a minute. For my friend and fellow columnist Halsey Blocher and me, looking at the bright side…
SMA Awareness Month is coming up in August. The question for me is, what’s the best way to raise awareness about this disease? My thoughts are that it is best to share that sometimes life can get a little dark for those of us with SMA. Over the past…
One day about 15 years ago, I was watching a funny show. It was lighthearted and entertaining, yet one comment made me think seriously. It still does. A person said, “I heard that computers were a fad!” Obviously, it was a joke. However, I thought to myself, “Where would I…
At first glance, my life may seem unusual. The more people get to know me, though, the more they’ll see that I share many of the same problems and emotions that most others have. Like everyone, I’ve experienced the death of loved ones. But I’ve also experienced loss in a…
Here comes the latest adventure in the saga to remove my kidney stones. Spoiler alert: I came close to leaping over the hurdle of getting the surgery done. Unfortunately, though, I didn’t quite make it to the operating room. Relax. The reason had nothing to do with me.
While reflecting on my life today, a witty phrase popped into my head. I laughed to myself as I thought, “I don’t have to go looking for trouble, trouble will find me.” As I’ve said before, if I didn’t have a sense of humor about some things, I would…
Today, I thought about the question, “How can I become a better advocate?” For the first time, I realized that I’d taken part in advocacy activities even when I didn’t know it. This is how it happened. I like to buy and download turn-based PC games. In these, I…
Today I want to talk more about my outlook on life, as well as yours. Hopefully, nobody who regularly reads what I write ever comes away thinking that I have it all together. I will be working on my outlook and personal growth until the day I die. I hope…
Years before the pandemic, I was visiting a museum in Washington, D.C. A young child looked at me and my high-tech wheelchair. He then asked my mom, “Is he real?” I have to think from his perspective. We were at a technologically advanced museum. He probably thought that I…
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