Years before the pandemic, I was visiting a museum in Washington, D.C. A young child looked at me and my high-tech wheelchair. He then asked my mom, “Is he real?” I have to think from his perspective. We were at a technologically advanced museum. He probably thought that I…
Soaring With Hope — Ari Anderson
Ari Anderson resides in Charlotte, North Carolina, and was diagnosed with SMA type I at 6 months old in 1982. At the time, the prognosis was almost hopeless. Today’s medical therapies have changed the prognosis to hopeful. Yet, the rest of society has a long way to catch up in how they see people with SMA. Through his column, “Soaring With Hope,” Ari shares how he changes views through advocacy, innovative technology, and determination. He inspires hope by helping others rise above their hardships. No matter who you are, through his conversational style of writing, you may find that you have experienced the same feelings and emotions throughout your life as Ari has!
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One of my rules is that nurses cannot care for me when they’re sick. Although this creates challenges, I don’t want to risk exposure. Because I live with SMA, the repercussions of a virus or other cause of illness on my health would be severe. Another thing that creates…
We all experience moments that change our destiny. For me, it might have been learning whether I had passed a major college exam. For others, it might be the moment their partner responds to a marriage proposal. We often anticipate this type of life-changing moment. But what about unexpected moments?…
I like the saying, “It’s always darkest before the dawn,” but I think it’s overused. We should come up with other phrases that mean the same thing so that the idea doesn’t become too cliché. People can pick whatever words they prefer, based on their own situation. All that matters…
I’ve recently learned about two kinds of achievements in life. One is when you’re up a creek in a bad situation, but miraculously, things seem to resolve on their own. The second is when you have to work extremely hard to achieve your ambitions, and charge through whatever life throws…
As Christmas and the end of the year draw near, I’m reflecting on what 2021 has meant to me. If I look at the past year through a pessimistic lens, I could easily say, “Nothing has changed.” I’m still stuck at home because of the pandemic, and there’s still…
From my perspective, time is a more important resource to me than money. It’s all about spending my time wisely on the important things so that I can get a good return on my investment. Yes, it’s that old cliché that “time is money.” However, let’s look at…
I enjoy writing for SMA News Today because it grants me a sense of freedom and independence. I basically have the ability to send out invitations for readers to visit the inner workings of my mind as someone with SMA. I have the freedom to select a column topic…
Ever since I can remember, I’ve been taught that I am a soldier in this war against SMA. My destiny is to help others fight it, too. Early on, people gave me gifts to help me remember my purpose. One person, inspired by my fight against an overwhelming opponent, gave…
A little while ago, I went from using one nursing agency to using three. The change allowed me to find enough nurses to sustain the care I need with spinal muscular atrophy (SMA), and it taught me an important lesson about when to ask for help…
Have you ever been in a deadly serious situation that you looked back on later with humor? Perhaps you’re doing your normal activities and suddenly slip. Or, maybe an object accidentally falls and smacks you in the head. Don’t get me wrong, a slip and a fall or a smack…
Have you ever looked back on the person you used to be and thought, “That was a lifetime ago!” When I think this way, I look at it from two different perspectives. On one hand, yes, my past self seems light-years away. On the other hand, that other me seems…
Have you ever looked at pictures of people on social media and wished that was you? The human race is made up of many different shades. At some point, though, we all turn green from envy. These feelings can greatly affect people with chronic illnesses and lead to an especially…
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