The Spinal Muscular Atrophy Podcast
Join Bionews Associate Director of Community Content Kevin Schaefer as he explores current SMA issues through engaging conversations with those living with the disease, medical professionals, and caregivers. Listen to the latest episodes below, and follow SMA News Today on SoundCloud to catch up on all discussions in this exciting series.
#144: Doug McCullough, Advocate and Author With SMA
In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new book about understanding disability, Doug previously worked at Johnson & Johnson Pharmaceuticals and has a background in public speaking. He talks about growing up with SMA type 3, navigating employment with a disability, and advocating for an inclusive society.
About Kevin Schaefer
Kevin graduated from North Carolina State University with a bachelor’s in English in 2016, and he is passionate about different forms of storytelling. He started at Bionews in 2017 as a columnist for SMA News Today, sharing his experiences as an adult with SMA type 2. He eventually transitioned to a full-time role, helping build the company’s multimedia and forums divisions.
As director of forums, he is responsible for supporting the director of multichannel content in bridging the gap between our patient populations and our websites. He does this through building and maintaining patient and caregiver forums across Bionews’ disease sites. He oversees every step of the process, including hiring, training, and guiding forum moderators. His goal is to create engaging and supportive online communities for patients and caregivers to connect.
