31 Days of SMA: The Things We Don’t Take For Granted

31 Days of SMA: The Things We Don’t Take For Granted

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Day 24 of 31 Days of SMA⁣⠀ Topic: The Things We Don’t Take for Granted⁣⠀ ⁣⠀ This is @stylesuitemc story⁣⠀ ⁣⠀ Yesterday I picked Brady up after an amazing 4 days of MDA Camp. He spent the whole ride home telling me about all the cool things he did this week – rode a horse, flew in a hot air balloon, won a gold medal in archery just to name a few. On our lunch date he told me about this new thing that MDA started doing at camp… each kiddo was asked to write down their one biggest wish. Like, something they’ve been wishing for a long time. Brady’s wish? That someday he will stand… It was said so matter of factly across the table, with no sadness or anger in his tone. That alone caught me off guard, because this conversation is usually had with so much emotion behind it… when he can’t join friends in an activity or feel uncomfortable from a day of being in his braces, this conversation happens. While we remain hopeful for a day that he can take a step, it’s the tiny everyday victories that get us excited the most. Being able to lift his arm up without assistance, spraying the water gun a little further than the week before and finally being able to use a metal fork instead of plastic. All the things able bodied folks take for granted, we celebrate. ⁣⠀ ⁣⠀ #SMAawarenessmonth #CureSMA

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Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.
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Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.

One comment

  1. MARD says:

    It is a joy indeed to celebrate every milestone and victory that my daughter achieves. She gets so excited when she started rolling on her sides all by herself. It’s a humbling journey why we don’t take these milestones for granted.

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