Author Archives: Sherry Toh

For the Love Who Stayed on My Darkest Nights

After I was hired as a columnist for SMA News Today, a stack of onboarding documents was sent to my email. I spent an entire day reading them and signing my name systematically. But among the documents, one titled “Writing Advice” drew my deeper attention. I’m not usually one who…

A Plea for Singapore to Approve SMA Treatments

Imagine there’s a Singaporean girl with SMA. She’s exhausted by chronic neuropathy, medication, and feeling like she’s worth less than her able-bodied peers. So exhausted, in fact, she struggles with writing about her disability for SMA Awareness Month. “Google is free. Why should I have to make myself uncomfortable and…

I Don’t Want a World Without SMA. Here’s Why

When I was diagnosed with SMA, my parents were confronted with a pivotal choice: stay in Singapore or move the three of us to the U.S., where they’d heard there might be an experimental gene therapy that could treat me. It’s a decision that would have altered the course of…

The Siren Song of a Magic Cure

A woman lies in a hospital bed, her breathing erratic and her forehead damp with sweat. She’s shaking from the pain she’s in. In a matter of days, the loss of control and sensation in her legs has spread to her right hand and is now progressing to…