A Medical Procedure Reminds Me to Thank My Body for Its Endurance
The other day, I had an appointment at the hospital to change my nasojejunal (NJ) feeding tube. Since the…
Articles by Alyssa Silva
My Most Comfortable Position Makes Me Feel Uncomfortable
Before I began writing today’s column, I recorded video interviews for a rather well-known brand here in the United States,…
The Best Unorthodox Advice From My Doctor
When you’re living with a complicated disease such as SMA, it’s half the battle to have a knowledgeable and…
How the Formula Shortage Has Affected Me as Someone With SMA
Whether it has directly affected you or not, chances are you’ve heard about the formula shortage happening…
Avoiding COVID-19 Exposure Is Like a Game of Dodgeball
While most of my elementary school days are a bit fuzzy in my head, lately I can’t stop thinking about…
Overcoming Roadblocks to Chase My Dreams With SMA
For most of my teenage and early adult years, I had big dreams of working in fashion. As a…
Adapting to My NJ Feeding Tube
Lying in a hospital bed, I watched as a nurse demonstrated how to use a nasojejunal tube (NJ tube)…
Finding Somewhere Between Burnout and Balance
I’ve been having trouble coming up with a topic for this column. Perhaps I shouldn’t open with that, but stay…
I Am Here, and That Is Enough
As I prepare to write my first column in over a month, a nasojejunal tube is pumping…
Facing New Challenges Gives Me Clarity and Control Over My Life
For nearly two years, my days have been filled with health problems. Well, I’ve always had health…