Why Participating in Research Studies Is Important to Me
For as long as I can remember, I have participated in the SMA community in some way. Whether it was…
Articles by Alyssa Silva
Why My Journey With Disability Pride Isn’t Linear
Even though I’ve been disabled all my life, I had never heard of Disability Pride Month until I scrolled…
Actually, My Disease Does Define Me
Recently, someone I know commented, “Alyssa doesn’t let her disease define her.” I absolutely understood where they were coming from.
Thanks to SMA, I’ve Acquired a Wealth of Medical Knowledge
If I had to choose the top three places I frequented prior to the pandemic, they would be the local…
Navigating the Past Year Without Caregivers Has Been Challenging
I’ll never forget March of last year when the pandemic began. Many of us didn’t realize how serious it was,…
I’m Remembering to Prioritize My Mental Health
During the height of the pandemic last year, a steady influx of people often reached out to me to check…
Reflecting on My Diagnosis Day, 30 Years Later
Last week marked 30 years since my diagnosis day. So many emotions resurfaced as I reflected on the past three…
Why My Teacher and I Faked My Detention in Middle School
Growing up, I was a fairly well-behaved student. I did my homework. I paid attention during class. I always raised…
A Sibling’s Perspective on Life With SMA
On April 10, the United States will celebrate Siblings Day, a day to honor and appreciate the bond we…
My Unsolved Symptoms Add Flair to My Rare
These days, I’ve been soaking up all the true crime content I can set my eyes and ears on. Documentaries,…