During our most difficult health journeys, life can teach renewal
Once upon a time, a pandemic enveloped the world and put my life on hold for years. With a weakened…
Articles by Alyssa Silva
A winter snowstorm can feel magical — until it doesn’t
Whenever it snows, I feel like I’m inside a snow globe. The sparkling flakes daintily scurry down, covering the glistening…
Why I no longer make New Year’s resolutions
This may be an unpopular opinion, but I don’t buy into the hype of New Year’s resolutions anymore. For…
Reflecting on the SMA treatment decision that changed my life
This column describes the author’s own experiences with Spinraza (nusinersen). Not everyone will have the same response to treatment.
Reflecting on joy and kindness this holiday season
As I check off the last item on my long list of gifts for the family I adopted this…
Learning to find joy in the most unexpected places
Entering the hospital recently for what felt like the millionth time was not my idea of an afternoon well spent.
Here’s why I navigate the months of winter without a coat
With a brisk chill in the air and an impending snowstorm near, I’m reminded that it’s officially the time of…
Handling the reality of respiratory infections while living with SMA
If you’ve never shivered at the sound of someone coughing, chances are you’ve never experienced the weight of a respiratory…
SMA and the power of community: Finding solace in shared journeys
Contrary to what others may perceive, living with spinal muscular atrophy (SMA) doesn’t come with an instruction manual.
Why I prefer empathy over pity in life with SMA
“Please don’t feel sorry for me when I don’t feel sorry for myself.” These are the words I wish I…