When a last-minute trip takes a turn for the worse
Content warning: This column discusses medical trauma. First in a series. Who really knows what time it is? 11?…
Articles by Brianna Albers
‘Into the Unknown’: Embracing the unexpected in life with SMA
When I chose my theme for 2024, I didn’t expect to take it for a spin before the year even…
A look back at 2023, a year of contraction
On a Sunday morning in mid-November, I opened my email to a newsletter from one of my favorite writers,…
‘A tricky stick’: The challenges of getting blood drawn with SMA
The clock ticked accusingly on the wall. A lab technician had been inspecting my arm for the better part of…
The changing seasons trick me into thinking my disease has progressed
Some people live for cold weather. They hate the heat, for some strange, inexplicable reason, and live for the day…
Adults with SMA need and deserve better support systems
Every person with SMA deserves to have comprehensive care and to know they'll be taken care of, no matter what happens, from birth to death, says patient advocate Brianna Albers.
I owe my life to an incredible support team growing up
First in a series. “What was your support system like growing up?” I was on the phone with a researcher…
Why medical professionals need to familiarize themselves with SMA
Growing up, my pediatrician was more than a doctor; she was part of the family. She supported me through all…
One year later, a mysterious mouth injury strikes again
I’d just survived a car accident in Phoenix while road tripping with my parents from our home in Minnesota…
Embracing my wolf chronotype helps me forgive my body
In another world, I am my mother’s daughter, waking with the sunrise and heading to bed no later than 9…