Author Archives: Brianna Albers

In Defense of Cybernetics

If you’re a member of the SMA News Today Forums, you might know that I trialed the JACO robotic arm a few months ago. When I heard that Numotion was servicing my area of the U.S., I decided to give it a shot. Why not, right? I’m already…

The Evrysdi Chronicles: Waiting for a Diagnosis

Let me set the scene. It’s 9 a.m. I’ve been awake since 6. My poor, sweet dad has been up since 5:30. We’ve been preparing for this gut punch of a medical appointment for weeks, but even so, neither of us are particularly thrilled with our lives right now.

Doggone It, I Deserve It!

Every once in a while, I get the urge to go to the hospital. I’m not sick. I’m not concerned for my health. But there’s something about hospital stays that, when the stars align, can be incredibly restorative. I recognize this is my privilege talking. For many marginalized folks, hospital…

Shine Meditations Are Helping Me Build Somatic Awareness

I’m a big fan of mindfulness. In theory, at least. Mindfulness is associated with all sorts of benefits: greater tolerance, focus, and self-acceptance, decreased reactivity, an understanding of negative, self-sabotaging behavior patterns, and the ability to stay present, among others. It’s kind of a no-brainer. But mindfulness — specifically,…

‘Disability Visibility’ Imagines a Wildly Necessary Future

Content warning: The following contains discussions of ableism and eugenics. I knew from the dedication that “Disability Visibility: First-Person Stories from the Twenty-First Century” would be healing. “To my younger self,” writes editor Alice Wong, “and all the disabled kids today who can’t imagine their futures. The world is…

I Think My Dreams Are Telling Me Something

The romantic in me wants to believe that dreams are portents, or windows to the psyche, or invaluable self-knowledge tools. But the therapist in me, who dabbled in clinical psychology for a time, is suspicious of anything resembling psychoanalysis. (I despise Sigmund Freud, but that’s a topic for another day.)…

The Truth About SMA Awareness Month

Not everyone likes it. A while back, I was talking to a friend in Singapore who also has SMA. She mentioned that although she wanted to post something for SMA Awareness Month, she was struggling to balance her desire to advocate and raise awareness with her desire to, as…

Storms and SMA: The Opposite of a Love Story

When it comes to storms, I’m a dog with high levels of anxiety. Don’t get me wrong, I love the rain. A gentle rainfall is the perfect backdrop to at least half of my favorite activities. But storms are a different story. Storms are thunder and lightning and impending…

Facing My Fear of Surgery Through British TV

I was a bit of an Anglophile in high school. I was obsessed with anything produced by the BBC — “Doctor Who,” “Sherlock,” “Merlin,” even the 2006 retelling of “Robin Hood.” It didn’t help that my best friend lived in Scotland and often spoke in British endearments. I was thoroughly…