Every person with SMA deserves to have comprehensive care and to know they'll be taken care of, no matter what happens, from birth to death, says patient advocate Brianna Albers.
Articles by Brianna Albers
First in a series. “What was your support system like growing up?” I was on the phone with a researcher…
Growing up, my pediatrician was more than a doctor; she was part of the family. She supported me through all…
I’d just survived a car accident in Phoenix while road tripping with my parents from our home in Minnesota…
In another world, I am my mother’s daughter, waking with the sunrise and heading to bed no later than 9…
Note: This column describes the author’s own experiences with Evrysdi (risdiplam). Not everyone will have the same response to…
I didn’t even know about the “Barbie” movie until I saw people talking about it on social media. I watched…
The older I get, the more easily I cry. It never used to be that way. I didn’t cry at…
It didn’t take long for my mom — who, in her own words, is not “retired” but “reliving” — to…
As hopeful as I was when starting naturopathy, I didn’t actually expect anything to come of it. Desperate for…