It’s strange to think that a little over two years ago, I witnessed — and participated in — the conception of SMA My Way, a patient-focused community sponsored by the biotech company Genentech to support all of those affected by SMA. A lot has changed since then. I graduated…
My local clinic isn’t actually local. Boasting neighbors like IKEA and the Midwest tourist trap that is the Mall of America, my clinic is a 20-minute drive — one way. I could take the moderately more scenic route if I didn’t have a penchant for running late, but I…
The insecurity hits when I least expect it. I knew it would take me a while to adjust to post-grad life. I spent 20 years in school, eight of which were online. I didn’t have the social life people associate with college students living on campus. My life consisted of…
One might say I was giddy. Once or twice a month, I drive 20 minutes to get shot up with allergens (mold and cat dander, for the curious). So the act itself was mundane. There was nothing special about trekking across the suburbs to my clinic of choice, aka…
Three years ago, I wrote a column about anxiety and apple orchards. After a long day at an orchard with my caregiver and her daughter, I reflected on something my therapist had said to me: “Can you feel the anxiety and do it anyway?” Three years later, life looks…
I’m about to give myself credit where credit is due: I didn’t freak out for several months. I have undiagnosed, but undeniable, health anxiety. So, I was surprised by my reaction to a recall announced last June by Philips Respironics of 13 respiratory machines, including the BiPAP machine I’ve…
I knew I was in for a treat when a friend texted me in all caps: “BRIE BRIE BRIE!” I was so into the book I was reading that I took a while to check my notifications. But once I did, it didn’t take me long at all to scream…
When it comes to vendettas, I have two. One is against Sigmund Freud. Freud, the “father” of psychology, who’s known for his unbelievably misogynistic views. Google “Freud misogyny” and you’ll get a laundry list of jeremiads decrying his influence on the mental health profession. Some of my favorites include…
Every August, I sit across from a nurse and prove that I am, in fact, still disabled. Disclaimer: I completely understand why assessments are necessary. I’m the beneficiary of countless government programs, from Medicaid to much-needed support funds. I’m not just blessed, I’m privileged as all get-out. I dislike the…
Weeks ago, when my friend Sherry and I started brainstorming topics for Disability Pride and SMA Awareness Month, we talked about choice. Specifically the hypothetical kind. In an ideal world, with free healthcare and radical accessibility, would we choose to stay disabled? It’s a question I’ve asked myself numerous…
