Charles Moore,  —

Cure SMA granted just over $2 million in new research funding in 2015-16. The non-profit organization dedicated to advocacy and treatment research funding for spinal muscular atrophy (SMA), reports that the SMA drug development spectrum has expanded dramatically over the past decade, with six of the 18 programs currently in…

Cure SMA, a non-profit organization dedicated in large part to funding research for the treatment and cure of spinal muscular atrophy, reports that its drug development pipeline has grown dramatically over the past decade. Of 18 programs currently in the pipeline, six are in clinical trials, several of them…

FightSMA, an all-volunteer, parent-led nonprofit, reported that the U.S. Senate Appropriations Committee has, as part of the Fiscal Year 2017 Defense Appropriations bill, included for a first time spinal muscular atrophy (SMA) as a research topic in the Defense Department’s Peer-Reviewed Medical Research Program. FightSMA calls this welcome…

FightSMA, an Richmond, Virginia, based all-volunteer, parent-led nonprofit, has released an update on the status of clinical trials it is currently supporting. Founded in 1991 by Joe and Martha Slay after their son Andrew was diagnosed with SMA (spinal muscular atrophy), with a mission to “strategically accelerate” research to…

The U.S. Senate Health, Education, Labor and Pensions (HELP) Committee recently passed an additional seven bills. Cure SMA, a nonprofit organization funding research into new treatments and a possible cure for spinal muscular atrophy (SMA), and providing SMA families with support, observes that along with seven other bills…

FightSMA,  an all-volunteer, parent-led nonprofit with a mission to accelerate research for a treatment for spinal muscular atrophy (SMA) by raising awareness and funding for SMA research, is marking its 25th anniversary with an international research conference April 7-9 in Alexandria, Virginia. The meeting will gather leading spinal…

Kavita Krishnaswamy, a PhD candidate in Computer Science at the University of Maryland, Baltimore County (UMBC), has launched an online survey on attitudes toward robotic aids and how they may improve the quality of life for those with physical disabilities, their family members and caregivers, and is inviting participation. Data…

Cure SMA, a nonprofit organization funding research into new treatments and a possible cure for spinal muscular atrophy (SMA), and providing SMA families with support, reports that the Senate’s Health, Education, Labor and Pensions (HELP) Committee has passed seven bills as part of its “step-by-step” approach to Innovation and…

Cure SMA, a nonprofit organization funding research into new treatments and a possible cure for spinal muscular atrophy (SMA), and providing SMA families with support, reports that it has been carefully monitoring U.S. Senate consideration of bill H.R. 6, the 21st Century Cures Act, on Capitol Hill. Congress describes…

Cure SMA of Elk Grove Village, Illinois, and biopharmaceutical company Cytokinetics Inc. of San Francisco, California, announced an expanded partnership to increase public awareness, education, and fund-raising efforts for spinal muscular atrophy (SMA). As a Cure SMA National Gold Partner, Cytokinetics will lend support to key national and local initiatives…