My Family Is Thankful for the Nurses Who Care for Me at Home
In January 2011, I had a period of illness that sparked an emergency tracheostomy surgery. It…
Halsey Blocher is a young woman who was diagnosed with SMA Type 1 in 1999 after a blood test revealed a deletion of the survival motor neuron gene. She now lives with her loving family in Fort Wayne, IN and spends her free time reading, cooking, creating, and enjoying life’s blessings. Halsey is passionate about her work as the columns manager at BioNews Inc. as well as volunteering with various local organizations. Writing is her lifelong dream, so she uses this gift to advocate and offer glimpses into everyday life with SMA in the hope that it will inspire readers to seek the positive in every situation
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In January 2011, I had a period of illness that sparked an emergency tracheostomy surgery. It…
As my 22nd birthday rapidly approaches, I almost can’t comprehend it. The thought of my birthday has seemed surreal for…
Have you ever seen a person with a wheelchair rolling toward you and wondered how you should react? You’re likely…
Being sick tends to take a lot out of people with SMA, and the healing process is often slow. A…
For our summer vacation, my family and I decided to take a trip to Ontario, Canada, to see Niagara Falls.
Like many people, I love to cook. One of my favorite activities at Turnstone’s Adult Day Services program is…
The U.S. Food and Drug Administration (FDA) recently announced the approval of Zolgensma (onasemnogene abeparvovec-xioi), the first-ever gene…
If you live with a visible disability or illness, then there’s a good chance you’ve experienced a stranger coming up…
Since the age of 3, I’ve been attending Turnstone, a local organization that runs a center for children and adults…
Most people are familiar with the phrase “from where I stand.” The person speaking generally follows it up by sharing…
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