Posts by: Halsey Blocher

Halsey Blocher

Halsey Blocher a young woman who has Spinal Muscular Atrophy (SMA) type 1. Halsey is an avid reader and enjoys art and crock pot cooking. She is an enthusiastic volunteer at Turnstone Center for Children and Adults with Disabilities where she is also a client. She is now pursuing her writing dream by writing the SMA News Today column, From Where I Sit.

October 16, 2020October 15, 2020

Being Spontaneous Isn’t as Simple as It Seems

Columns, From Where I Sit - a Column by Halsey Blocher

What was the last spontaneous thing you did? Maybe you suddenly decided to treat yourself to ice cream, bought those shoes that have been calling your name, or went ... Read more

September 25, 2020September 24, 2020

Celebrating a Monumental Birthday 2 Decades in the Making

Columns, From Where I Sit - a Column by Halsey Blocher

For my birthday last year, I wrote about how each year is a blessing. I still find that to be true. Each birthday is a cause for celebration, as ... Read more

September 11, 2020September 9, 2020

Grasping the Reality of Evrysdi, a Breakthrough Treatment

Columns, From Where I Sit - a Column by Halsey Blocher

I have never been a morning person. My family, friends, co-workers, and pretty much anyone that has ever met me can tell you this is true. But on rare ... Read more

August 28, 2020August 26, 2020

Challenges Won’t Stand in the Way of Fashion

Columns, From Where I Sit - a Column by Halsey Blocher

It’s no secret that I love fashion. One glance into my generously filled closet confirms this. But as is the case with many things, SMA requires that I take ... Read more

August 14, 2020August 12, 2020

Every Day Is an Opportunity for SMA Awareness

Columns, From Where I Sit - a Column by Halsey Blocher

August has always been one of my favorite months. Not only is it an ideal time for enjoying lots of fresh air, but it also happens to be SMA ... Read more

July 24, 2020July 23, 2020

Your Scars Tell a Story of Survival and Strength

Columns, From Where I Sit - a Column by Halsey Blocher

I’ve collected a variety of scars throughout my life. Many people with SMA have comparable ones from similar surgeries. Even if you don’t have SMA, I’m guessing you also ... Read more

July 10, 2020July 8, 2020

A Drive-in Concert Was a New and Exciting Experience

Columns, From Where I Sit - a Column by Halsey Blocher

Because of the current state of the world, I felt safe in assuming I wouldn’t be attending any concerts this summer. I love concerts, but large, tightly packed crowds ... Read more

June 26, 2020June 25, 2020

This Year’s Debut Virtual SMA Conference Was a Resounding Success

Columns, From Where I Sit - a Column by Halsey Blocher

For many years, Cure SMA, formerly known as Families of SMA, has organized an annual conference that brings together members of the SMA community from around the globe to ... Read more

June 12, 2020June 10, 2020

I Feel Recharged by Fresh Air as Summer Approaches

Columns, From Where I Sit - a Column by Halsey Blocher

The long-awaited days of summer have nearly arrived, and I am doing my best to take full advantage of the warmer weather. After so many months of sweaters that ... Read more

May 29, 2020May 27, 2020

Raising a Puppy Is Hard but Rewarding Work

Columns, From Where I Sit - a Column by Halsey Blocher

We recently welcomed a new addition to our family. Our adorable puppy, Thor, is a mix of Australian shepherd (75%) and blue heeler (25%). Another name for this mix ... Read more

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