Halsey Blocher is 21 years old and has Spinal Muscular Atrophy (SMA) type 1. Halsey is an avid reader and enjoys art and crock pot cooking. She is an enthusiastic volunteer at Turnstone Center for Children and Adults with Disabilities where she is also a client. She is now pursuing her writing dream by writing the SMA News Today column, From Where I Sit.
The U.S. Food and Drug Administration (FDA) recently announced the approval of Zolgensma (onasemnogene abeparvovec-xioi), the first-ever gene therapy to treat SMA. This amazing news has thrilled the SMA ... Read more
If you live with a visible disability or illness, then there’s a good chance you’ve experienced a stranger coming up to you and asking to pray for you. As ... Read more
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