Saying so long to a year of countless doctor appointments
It takes a rather large team of specialists and various medical professionals to help manage my care alongside me and…
Halsey Blocher is a young woman who was diagnosed with SMA Type 1 in 1999 after a blood test revealed a deletion of the survival motor neuron gene. She now lives with her loving family in Fort Wayne, IN and spends her free time reading, cooking, creating, and enjoying life’s blessings. Halsey is passionate about her work as the columns manager at BioNews Inc. as well as volunteering with various local organizations. Writing is her lifelong dream, so she uses this gift to advocate and offer glimpses into everyday life with SMA in the hope that it will inspire readers to seek the positive in every situation
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
It takes a rather large team of specialists and various medical professionals to help manage my care alongside me and…
Have you ever dreamed of being a princess (or a prince)? I think most of us have, adults included. I’ve…
Individually and collectively, it’s vital to be sensitive to what’s happening in the world around us. This awareness allows us…
“Are we wearing a cloak of disability?” my mom asked as a vehicle pulled out in front of our wheelchair…
Elephants have long been my favorite animal. I even have a collection of items depicting them. I’m captivated by the…
I’ve been blessed to grow up in a city that’s mindful of accessibility and inclusion, which means there’s an abundance…
In a tourist shop on the coast of Lake Michigan a few summers ago, my mom spotted a sticker depicting…
There’s a trend taking root in the SMA and disability communities that has me worried. It’s the…
If you haven’t met this celebrity of the SMA community, I’d like to introduce you to my…
Mom and I always bring another person or two to my specialist appointments at the SMA clinic.
Get regular updates to your inbox.