Halsey Blocher,  —

Halsey is a young woman living with SMA Type I. She received this diagnosis at the age of 15 months after her parents sought multiple doctors’ opinions and genetic testing — a process that has since been made much easier with today’s technology and understanding of the disease. Halsey is an avid reader and enjoys art and crock pot cooking. She also enjoys serving as a volunteer for a disability center in her home state of Indiana. She is now pursuing her writing dream with the hope of offering glimpses into everyday life with SMA and challenging readers to look for the positive in every situation.

Articles by Halsey Blocher

Things to Keep You Busy During Coronavirus Isolation

Reports about COVID-19 have been all over the news and social media. People around the globe are being urged or required to practice social distancing, proper hand washing, and sheltering at home to prevent spreading the highly contagious virus. You might be experiencing social distancing or self-quarantine for the first…

Should I Bring Up My Disability While Volunteering?

For many years, I’ve been involved in a fantastic local organization called Turnstone that serves the disabled community with a variety of services. I’ve been blessed to benefit from Turnstone’s services since I was 3, both as a client in therapy and in other programs. In…

Living at Home as a Young Adult with SMA

People look at me questioningly upon realizing that I live with my parents at the age of 22. Moving out is often considered a rite of passage. People expect me to do the same, even though many young adults enjoy living at home with their families. I don’t know what…

A Friendship So Special that Distance Can’t Change It

Because of SMA, I have met people that I might never have crossed paths with otherwise. I’m blessed with the opportunity to connect with nurses, physicians, equipment providers, and other SMA families. I love all of these unique connections, but I especially cherish my relationship with my best friend, Kim.

Keeping My Goals and Adapting Them to Suit My Needs

Congratulations! You have completed another rotation around the sun. Now that the holiday celebrations are over and we have resumed our normal daily schedules, let us turn our attention toward a common practice at this time of year: New Year’s resolutions. Many people choose to start a new year by…