Memories of the Past, and a Miracle in the Present
The Christmas spirit eluded me in 1997. Our baby Jeffrey, diagnosed with SMA that summer, had snagged his wings…
Helen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
The Christmas spirit eluded me in 1997. Our baby Jeffrey, diagnosed with SMA that summer, had snagged his wings…
Last year, my brother and I plotted to round up our respective families for Thanksgiving. It was a daunting effort.
After high school graduation, I studied abroad through the American Institute for Foreign Study. Based in Oxford, England,…
I credit my mother for my affinity for (most) things hair-raising. She loved thrillers. While her vision allowed, she…
My husband, Randy, and I live in the North Carolina mountains. The New River State Park down the…
If there’s not a 12-step program for sentimental slobs, maybe there oughta be. As a sentimental slob myself, I come…
My husband, Randy, and I had been married 23 years when news of a surprise third baby, um, surprised us.
Lights! Camera! Action! My family’s goings-on might make good fodder for a reality TV show. It’s been a memorable year…
The homework assignment in fifth grade involved music. I probably wrote a few short reports about composers and attempted to…
“MomMom! MomMOM!” When hollered out in glass-shattering decibels, my grandma moniker can mean anything. During my recent extensive time in…
Get regular updates to your inbox.